General Medicine

» writingmama - spinalmuscularatrophytype1

In response to spinalmuscularatrophytype1 posted by bluerose903r:
Hi there bluerose903r - how is your grand-daughter - what a worry for you and your family, I have done some research and you are right what a terrible disease this is, to see babies suffer must be heart breaking.
Have you visted the site called www.fightsma.org/ they have all the latest research results on spinalmuscularatrophytype1.
I will be doing an article on this disease in a couple of months. However, in the meantime if you have not already; take a look at this site, it may answer some of your questions. Please keep in touch and let me know how things are going.
My prayers and thoughts are with you and your family. Take care, writingmama

-- posted by writingmama