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bluerose903r
- spinalmuscularatrophytype1
Please let everyone know about this illness. It's out there and no one knows about it. 1 in 40 people have this bad gene that causes this and they don't know. My grand-daughter just turned 1 yrs. old in August and has been hospitalized for almost 6 weeks now. She is in an experimental study at Stanford University. Hopefully they can find a cure for it or atleast find something to stop the progession of it. All these kids and babies suffering from this is horrible. Again. please let people know so that the research can continue for a cure. ThankYou bluerose903r